Dementia is a disorder which causes loss in memory, cognitive skills and thinking over a gradual period of time. Families with a senior parent, grandparent or other relative who has dementia can be overly burdened with the slow loss of their loved one. In such a situation, community support for families of individuals with dementia is extremely essential. Community support can provide  families with a place to belong in society, a sense of emotional support and also assist with physical help when needed. 

Community support groups help raise awareness and spread more knowledge about dementia with the wider population. They can assist with increasing awareness, providing access to support services, linking to social events and activities, and supporting people to engage in the community. Communities can improve access to support services for people with dementia and their caregivers. They can provide social events and activities for people with dementia and their caregivers. They can also support people with dementia to engage in the community [1]. 

Seeking community groups for dementia can be fairly challenging if one is not aware of where to look. Facebook communities would be a good place to start as they are good avenues to find support and help others feel less disrupted in their life. Community resources such as faith based organisations, like churches, can be beneficial to find trustworthy communities. Local and state government or tribal social services and programs can also assist in finding communities related to dementia. There are also resources that are funded by the federal government [2]. 

Some support group locators and resources that can be used are:

1. USAging: This is a website that helps elders with illnesses such as dementia and chronic illness, and the families and caregivers of such individuals with finding the right communities and support groups around them in their local area. 

2. Eldercare Locator: This website aims to connect people with dementia and their supporters with the right resources and help that is needed in their local area or online. 

Attending a support group introduces people to others’ struggles, how they share similar experiences and stories and also discuss various coping mechanisms that have worked or not worked for certain individuals. One is also expected to receive care and emotional support but also provide it to those who are currently in need. This creates a safe space for people to understand each other and be validated by the other members of the community [5]. 

There are various benefits that one can attain from attending a support group. Some of these include providing a sense of belonging to the individual; spreading awareness about the condition and giving people more information on how to deal with it; it helps alleviate stress and anxiety from the individuals by helping them lessen the burden on themselves by giving them the required support; motivation for continuing with treatment plans and options that are available; and lastly learning more about the health, social and economic resources that are available [5].

However, with the benefits of having a support group, there are also some disadvantages that come with them. Group sharing can lean heavily on anecdotes rather than evidence-based treatments. Naturally, when discussing one’s problems, the mind tends to make comparisons on whether the intensity of one’s own situation is worse or better than others, so it is important to be mindful that everyone’s situation is unique. Apart from these limitations, the overall benefits of a support group outweigh such problems that may come up during a support group meeting. 

Encouraging family members to join a support group involves the discussion of benefits of a community, sharing experiences, and coping mechanisms. One must also attempt to resolve any queries or questions that may come up about joining the community for support [6]. Factors that are involved in social support groups are encouraging appreciation of one another, staying in touch and making interpersonal bonds, accepting and providing help, celebrating small victories in treatment plans, respecting others’ boundaries and needs and also having emotional, economic and social support from the community or the federal resources [7]. 

Finding a support group for families of dementia patients can make a world of difference in navigating the challenges of caregiving. Whether through local community centers, healthcare organizations, or online platforms, these groups provide a safe space to share experiences, gain emotional support, and learn practical caregiving strategies. Remember, you are not alone, connecting with others who understand your journey can bring comfort, resilience, and hope. Take the first step today and reach out to a support group that fits your needs. You deserve the support as much as your loved one does.

References: 

1. https://www.tandfonline.com/doi/full/10.1080/08959420.2021.1973341 

2. https://www.alzheimers.gov/life-with-dementia/find-local-services

3. https://www.usaging.org 

4. https://eldercare.acl.gov/Public/index.aspx

5. https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/support-groups/art-20044655 

6. https://www.mentalhealthfirstaid.org/2020/08/the-importance-of-having-a-support-system

7. https://socialwork.buffalo.edu/resources/self-care-starter-kit/additional-self-care-resources/developing-your-support-system.html